I have had Raynaud's my whole live but only recently was diagnosed, and on the other hand was diagnosed with adhd 12 years ago right out of high school and never tried medication or had access to any supports. I'm in now and decided to try medication for the first time. I've been on 6 medication in 6 months, and they've all made my raynaud's attacks way worse. I'm talking wool socks on 30° days bad.
I have Raynauds. I've had since I was a kid. I've learned some things that set it off and I avoid them. I have 1 pair of shoes that are super comfy but even on a hot day my toes turn white and hurt. I'm on Adderall but I have not noticed that it made it worse.
Hi. I'm so sorry about what you're going through. It might be worthwhile to find a psychiatric nurse who specializes in ADHD. After I was diagnosed two years ago at 54, for god's sake. My therapist prescribed me 10 mg of Adderall IR. While it was brilliant to think and act clearly, 10 mg was way too much for me. Additionally, the meds gave me restless leg syndrome and this itchy feeling all over my body to the point where I’d bruise myself. When I began working with an ADHD psychiatric nurse, she told me the following matters: - the drug manufacturer. Teva is one of her preferred manufacturers. There are a number of others who use different additives or fillers that can result in adverse reactions like RLS. - Also, she asked me to titrate DOWN. She said that the dosage is based on 2 things: your unique blood-brain barrier and how you metabolize the drug in question. The combo of those two things helped crack open everything. We did try out Concerta, but that turned me into a wreck. I also don't metabolize extended-release options (like Vyvance and Mydayis) as they're intended. They build up in my system to the point where I almost have lock jaw and become a raving b*tch. Finally, she told me that when I was feeling crazy anxious or was playing every mortifying moment I've ever experienced in my cranial theater, I should not be feeling this emotionally awful. She worked with me until we found the right med and dosage. I just used my AI search and discovery app. Medicines that exacerbate Raynauds: Methylphenidate (Ritalin) Dextroamphetamine (Dexedrine) Beta-blockers Medications that do not exacerbate Raynaud's phenomenon: Lisdexamfetamine (Vyvanse) Clonidine Ergot alkaloids Dopaminergic agonists Selective serotonin reuptake inhibitors Cyclosporin I hope this helps!
Ugh. I can empathize. It took a full year and a half of trying Ritalin, Adderall IR, Adderall ER, Vyvance, and something that starts with an M maybe. Some of them turned me into a teeth clenching beeyotch. Horrible. How difficult is it to get a prescription for Vyvanse? Sending you peace and focus!
That's super helpful! Unfortunately the Healthcare system is trash here (PEI, Canada), and seeing a psychiatric nurses don't see patients as far as I know, so my options are keep seeing my GP about it, who has a 3 month wait list for appointments, or wait 6 months or more for a psychiatrist referral. But have been wondering about Vyvanse though! Good to know it won't affect my Raynauds. My husband is on it and has told me about how long it lasts. Currently I'm on 40mg of Biphentin and usually only get 3-4 productive hours from it. During those hours it's almost like my adhd is worse, it's like being in a deep hyperfocus that's almost manic, but I feel motivated enough to actually start and finish things. Not ideal, but this is the first medication that's helped me actually be productive.
I do!! Have you tried beta blockers? Also, I’ve found it helps to immediately warm up my feet if they start to get cold. Even the littlest bit cold. The quickest way for me if I’m not near a heater or have no options to warm my feet is to take them out of my shoes, take my socks off, and warm them with my hands/ body. I swear the socks & shoes can keep in the cold! It’s almost like they need to be reminded that they can be warm again.
Wish I could! My BP runs low, I've had it read at 64/48 before 😅 I'd be on the floor
