rossj12 avatar
rossj12
1
1 year ago

What bothers you the most about having ADHD?

What bothers me the most about having ADHD is the negative stigma attached to it, and how prevalent it is.

What bothers you the most about having ADHD?
nickdaniel avatar
nickdaniel
1y

This one could be funny but… my therapist sent me a paper about this medicine that could help with my ADHD, but it’s been months and I still didn’t read it in order to decide if I should take it.

futurefurr avatar
futurefurr
1y

The paralysis, recently especially around already big life changes (moving, selling my car, losing my job). It makes emotional regulation a Herculean effort and then I start forgetting important things like taking my meds, brushing my teeth, paying bills. It impacts every small and big thing in my life. It can be very exhausting!

CoolCatCarter avatar
CoolCatCarter
1y

Realizing how many relationships have been ruined due to mine and my partner's ignorance on why I am the way I am

lilmushroomgal avatar
lilmushroomgal
1y

I think for me it’s how many misconceptions people have about it. They expect me to be very loud, extroverted and disruptive of others. Those are stereotypes based typically on “male ADHD”, making it much harder to detect in women and girls. Of course, these stereotypes are not necessarily true for all men with ADHD either…

GuyDo avatar
GuyDo
1y

I’ve been diagnosed quite late in live. So to me now things become more clear on why i struggle with things that to other people seem so simple. My problems seem to be ridiculous. So the stigma is there because its hard to explain. When you describe the symptoms most people say something like ‘yeah i sometimes have this to, but it still manage… blablabla’. The guilt tripping is hard to overcome

 avatar
1y

Being in a room of people and realizing I am the only one fidgeting around, moving, making noise, shuffling paper, going thru my bag, interrupting others, not being able to pay attention or focus.

Moogab3n avatar
Moogab3n
1y

Avoiding important plans and letting opportunities pass me by because I’m too overwhelmed

MsDimples avatar
MsDimples
1y

Knowing I need to clean up the house but letting it get so bad it’s overwhelming and literally puts me in a panic mode for weeks, then some random day I’ll get a hair up my ass deep clean the kitchen and just stop there. Why? Why can’t I be a good wife and mother and clean my home? I want to and know I need to but the getting and doing blows! 😭

Whentostart avatar
Whentostart
1y

Create great, doable plans but never being able to finish them or get distracted and forget my plan ever existed

HooseCoatHero avatar
HooseCoatHero
1y

I feel it steals the things you love, like activities and hobby etc. I feel like there are things that I want to do, but if ADHD has decided we're bored of them then I can't anymore. Well, until it comes back around as a hyperfixation, which can be weeks, months, years or never again 😭

R2r2Thyme! avatar
R2r2Thyme!
1y

Knowing what I have but then having to figure out how to get myself to optimal levels while figuring it out for my daughter too.

Fuso94 avatar
Fuso94
1y

Knowing I can do much more than what I actually do

jellyburn avatar
jellyburn
1y

Having ideas left and right but never able to do anything with them. I get discouraged. I start some and never complete them.

quincydincy avatar
quincydincy
1y

I can never finish my work

kdawg88 avatar
kdawg88
1y

I get on my husbands nerves when I try to let loose

 avatar
1y

People not understanding my behaviour even when it's clearly explained to them

adhdkitten avatar
adhdkitten
1y

Lack of executive function

sexYmommA88 avatar
sexYmommA88
1y

The inability to stick to something once I've started.... I see something else and my brain screams "squirrel" like an untrained dog and I go zooming off to the next thing. By the end of the day I'm exhausted with a bigger mess than before. Can anyone relate?

delfrador avatar
delfrador
1y

That no one cares about that it's hard to you to do things in time. If you can't do tasks in certain time - you're just worse than other workers.

bricoley avatar
bricoley
1y

Literally living in chaos 24/7.

sanmusa avatar
sanmusa
1y

Starting projects and not completing them. Somethings even wanting to start a project but not even starting it...

 avatar
1y

questioning my diagnosis but also questioning everything about my life and what I know to be true and my sense of self and then the exhaustion of this non-stop inner-critic evaluating every thought or thought pattern that I have

luckypachyderm avatar
luckypachyderm
1y

Getting in my own way.

LouHar avatar
LouHar
1y

Other people being impatient

cherrykristen avatar
cherrykristen
1y

Being told it doesn’t fit who I am, because I’m great at compensating, even though my brain is exploding

squirrellymomma avatar
squirrellymomma
1y

Everyone thinking that it’s all in my head. That I can just do things like someone without adhd.

cherrykristen avatar
cherrykristen
1y

Yep! Right there with you

 avatar
1y

All these great ideas with no action. It’s like I am in a cage.

aliona :p avatar
aliona :p
1y

Hello

milyt avatar
milyt
1y

The adhd paralysis, its like a special hell

aliona :p avatar
aliona :p
1y

Understand you

Keija avatar
Keija
1y

well always disappointing myself and others because of it .. and the embarrassments I seem to always been stuck in a mind fog. People assume that my brain work the same way as others but it is simply not. Forgetting to do simple tasks that bring alot of frustration from others and it is frustrating myself to because I tell my self that I could always has been done better paralysis between tasks that seems all important and cant getting myself to finish any of them because i go back and forth between those task in my head but physically too that making me lose alot of precious time and make me percieved as slow having to return back home for things i forgot and arriving late to my destination because of it Procrastination tendencies

zoygar avatar
zoygar
1y

I relate 100%

scattercat151 avatar
scattercat151
1y

1. Being late all the time. Even when I've promised not to be. 2. Forgetting everything 3.the frustration caused by knowing im very capable of so much in life, and not being able to achieve those things for no good reason. I do feel better after diagnosis but even after meds I struggle a lot.

 avatar
1y

It hard that it’s such an internal issue. Like technically it’s a “disability” but because of what it does/makes you act/effects us the rest of the world doesn’t understand. It’s not visible like a missing limb, except it’s just as debilitating not having executive functioning.

waitwhat4506 avatar
waitwhat4506
1y

Forgetting everything which makes ppl think I don’t care about them and having to explain away my issues constantly 🤦‍♀️🤦‍♀️

leeknow avatar
leeknow
1y

for me it’s definitely the fact that i always annoy people for many things caused by my adhd, and definitely the fact that i forget EVERYTHING

coursegrind avatar
coursegrind
1y

I think for me it’s the mental strain of work each day and how much energy it takes away from the things I really either want to do or need to do. I have way too many unfinished projects around the house it’s embarrassing.

kimbocookie avatar
kimbocookie
1y

Not being able to get the things done I need to get done to improve my mental health

distrctdbyplnts avatar
distrctdbyplnts
1y

Being called strange and written off for craving deeper conversation and philosophical approaches to life and modern issues.

ParabolicHeater avatar
ParabolicHeater
1y

Tunnel vision I get

Jbird avatar
Jbird
1y

The never ending overthinking.....

evilyn  avatar
evilyn
1y

The ability to not put my thoughts into words. It’s gotten worse over the years. People think I have a problem with my grammar but it’s literally my brain just shooting out whatever words that might make sense.

leeknow avatar
leeknow
1y

BRO SAME . and ion think it’s ever gonna go away i hate it

bluebird711 avatar
bluebird711
1y

Where do I start? The inability to get things accomplished. Which leads to a downward spiral of guilt and self-hatred. Having to take a medicine that if I run out of it I’m totally screwed. I’ve been on Adderall for 24 years now. If I don’t have it, I go to ZOMBIFIED I can’t function at all.

iamashfully avatar
iamashfully
1y

This. 1,000,000%

emilymaexo avatar
emilymaexo
1y

Also I have severe ADHD that's was diagnosed until I was 17, and was never treated until recently (12 years later) and three kids, two of which also have adhd. There are no resources where I live, no support groups, and long waits for psychiatrist referrals. I hate trying to teach my kids hope to cope with adhd when I was never taught myself.

evilyn  avatar
evilyn
1y

What??

emilymaexo avatar
emilymaexo
1y

I work as a school photographer, I just love when teachers come in during the day to small talk and go off about how adhd is caused by parents letting their kids watch tok much TV and how it's fake 🫠

dogslikecats avatar
dogslikecats
1y

Wow. And you’re not in jail yet for assault & battery?

moonbugz avatar
moonbugz
1y

Not being able to get things done that I need to, and lose my train of thought so I end up spiraling and feeling horrible

 avatar
1y

I totally relate!!

lhia92 avatar
lhia92
1y

Feeling so guilty for being different 😔

pr3achcobbl3r avatar
pr3achcobbl3r
1y

That people who don’t struggle with it see it as just a disorder. I find many strengths in the way my brain works. I’ve learned to not waste time on emdevours that really don’t southe my soul even if I find them interesting. I can always do a task if I truly care about it and am given an environment to focus. For me noise cancelling AirPods with low fi hip hop is my happy place. As long as someone doesn’t disrupt my attention for their needs I can focus on completing my task. I’ve come to terms that creating an environment suitable for how my brain works just simply has to be a priority for me to thrive. I make no apologies for it either. I like living alone even if I have a partner. I prefer to sleep alone because another person’s energy in bed can keep me up. I find sleeping with brown noise on or the Schumann resonance on helps me go into deep sleep. I enjoy working as an independent contractor and having my own business because I work for me on my interests. ADHD is just the pure give of honest attention. The trick is finding the tools to find passions and interests that are long lasting or benificial. I can hyper focus on video games but they don’t serve my life well. For years I tried to be a musician and producer but I realized my real talent was my voice and visual artistic expressions. I find that one on one conversations are much more my strength than small group conversations. It’s trial and error but our ultimate task as people with ADHD is to be introspective and self aware to take a mental inventory of what really resonates us and what isn’t for us. Being ourselves is the most important thing. When you’re bad at a job after enough time has passed it usually means our brains are telling us this job just isn’t for us. When we keep starting and stopping a hobby that usually means that hobby isn’t our true interest and we’re more concerned about being interesting ourselves. Yes I understand that many things in life we have to do even though we have a hard time focusing on them. We all know that. But so much of life could be what we actually like and hyper focus on and that’s what all of us should seek out. I love learning through video. I love audiobooks instead of readings. I love long form conversation podcast. I don’t like anime and I can’t explain why. It just doesn’t do anything for me. I love hip hop, bass music, indie rock, blue grass, and 70’s rock. I don’t like techno, heavy metal, and punk music. I don’t have any problem with people who do and I’m happy for them to. I just like what I like and that’s okay. So much of the pain of my adhd is executive function caused by participating in things I don’t like. So I’ve learned over the years the best way to enjoy life is to spend my free time and work focused on what really brings me joy. Not just pleasure but joy. Things that not only I love but that I can share with others or do for others. When wielded right my ADHD brain is a powerful force and not a disorder. I’ve found I have to demand to be understood by others who don’t get me. I show them empathy so they can return it as well. That’s love. I also like to understand other people’s neurodivergence’s and try to accommodate them as best I can because that’s what I hope others will do for me. I thrive mostly working alone. I thrive with my living space as my sanctuary. But I also know too much introversion and alone focus can’t quickly turn into isolation so I focus my time on people who not only fascinate me but treat me well. I try to treat everyone kindly but I’ve learned to close my circle. It’s much better having ten amazing friends than 200 acquaintances. I could go on. The world is not built for us but we can build our world within it. Love you all!

nickdaniel avatar
nickdaniel
1y

Thank you for sharing! These are great insights. We need to have the courage to do what’s best for us.

iamwe? avatar
iamwe?
1y

I just wanted to say what you have discovered sounds truly amazing. I hope i can discover this myself one day ❤️

throatgoat247 avatar
throatgoat247
1y

Forgetting what I’m doing when I go to do it..it’s sooooo annoying

adhdmum34 avatar
adhdmum34
1y

The stigma and feeling broken when I struggle to live up to others expectations

lidhd avatar
lidhd
1y

People who don’t experience it want to fix it but turn out to only care about the external behaviors. That’s the problem with fixing as help, when helpers who have the insight to understand the underlying mechanisms in order to explore healthier and more productive outcomes - the fixers trigger RSD for me because fixing is subconsciously labeling it a “problem” Which feeds the stigma, which feeds the RSD, which feeds the stigma. I have learned to treasure my ADHD friends who may lend a supportive ear and remind me we aren’t alone despite stigma.

tinker93 avatar
tinker93
1y

That people assume adhd is only the inability to focus and get easily distracted. For me it’s much more than that. It’s the perfectionism to complete something intill i see it as done. also people see procrastinating as being lazy, but it’s not laziness it’s just i know the importance and want to do well it’s so overwhelming that i put it off even though i know it needs done.

Chelseajo456 avatar
Chelseajo456
1y

Trouble completing tasks. I'm not hyperactive so if I turn on the TV I can be really sedentary but I've recently found that if I just turn up the music and dont turn on the TV I can get almost everything I want to get done accomplished

lhia92 avatar
lhia92
1y

Oh it's such a good hack, I will try it, thanks

bryyyyyy avatar
bryyyyyy
1y

Honestly just getting distracted for everything I find just a little boring. I feel like I would’ve been in a better spot if I didn’t get so distracted but hey I’m still here and I’m gonna try to be the best version of me

Jonas avatar
Jonas
1y

Knowing I'm smart, but seeming stupid at times.

iamwe? avatar
iamwe?
1y

Yep! Get this one!

ryiain avatar
ryiain
1y

How I say things (or forgetting what I want to say) vs. how they seem in my head are very different things. I always feel like I have to work harder to prove myself in business settings because I also seem “odd”

dopebyaccident avatar
dopebyaccident
1y

That most times, people think they’re experts and know how it feels when they know absolutely nothing more than the description on wiki and have barely overcome a common cold without breaking down. *breathes* that felt good to get that off of my chest! Aside from this, just never knowing when a nosedive will occur or when emotions will flood in. It’s like having super powers and it’s taking ridiculously long to learn how to use them. I feel like Ironman. I’ve mastered HOW to build the tech, but haven’t a clue how to actually use it.

buzzbrain18 avatar
buzzbrain18
1y

How difficult it can be to feel motivated. & the shame & guilt that comes along with it that fully induced ADHD paralysis which only reinforces the guilt & shame. & really thriving under a lot of stress & complexity. Like emails should not cause more stress than a 7 hour exam but they often do. I recognize how irrational it is but also don’t feel like I can logic my way through it

iamwe? avatar
iamwe?
1y

Can understand you here totally!

Daisymae avatar
Daisymae
1y

Not being able to work on a task at the same pace or for amount of time as other people when in a group.

kikiandmimi avatar
kikiandmimi
1y

Having a messy house and car and having people judge me for it. Also feeling like I was dumb in school and never living up to peoples expectations of me.

homegnome82 avatar
homegnome82
1y

Clutter, unorganized home, unfinished projects. The stress and guilt that comes from being overwhelmed by tasks. Inability to focus on school work

ohsooriginal avatar
ohsooriginal
1y

The most bothersome thing to me is not so much that I have it but that it was not caught in childhood. Instead I got to spend decades working harder and accomplishing less than peers I know I’m smarter and more creative than all because I didn’t know that I just need different tools and strategies. … and of course the feeling like an alien lol

iamwe? avatar
iamwe?
1y

Yes this is a hard one!

shauno73  avatar
shauno73
1y

Nailed it

dogslikecats avatar
dogslikecats
1y

I could have written this, word for word, it’s so close to my experience. I feel sorry for you, I know… more than almost anyone else you’ll ever meet… exactly what you mean here.

tiffanitwysted avatar
tiffanitwysted
1y

Having so many incomplete things/projects that I really wanted to do

pinkflaymee avatar
pinkflaymee
1y

For me, I think it bothers me most that I always have this perception in my head that people don’t like me. Or I come off as too strong or too chatty. Sometimes I don’t like these things about myself strictly because I feel like to other people they are not normal. I’ve never totally felt like I “fit in” sometimes I feel that I try to imitate the behaviour of people around me to be more appealing or “normal”

kahtnipp avatar
kahtnipp
1y

"The hardest part about having mental illness.. is people expecting you to behave, as if you don't." - Joker

jovi1991 avatar
jovi1991
1y

It bothers me that a lot of people tell me that “everyone has a bit of adhd” and it’s just one of the many brain types there are, not knowing about any of the impacts on life. 🤦‍♀️

colorfulanatomy avatar
colorfulanatomy
1y

Yes! I believe the hardest is the internalized shame of never totally ‘figuring it out’ / ‘there must be something inherently wrong with me”

deleraious avatar
deleraious
1y

The symptoms that negative impact others and feel selfish to the people I care about, such as being late and making people wait, interrupting, forgetting things or being clearly last minute with gifts or other thoughtfulness type things. Those bother me because even when my loved ones u derstand I still know it hurts them and feels like I'm sharing in the maintenance of the relationship...like the give and take or courtesy.

potatoes  avatar
potatoes
1y

I feel this soo much that I've made it a point to tell everybody that I don't do holidays or gift-giving in advance ever so don't get me anything that way nobody has to deal with not getting something or being last minute or whatever and thoughtfulness is not my thoughtfulness ness Even though I have the best intentions all the time it seems that they get lost somewhere along the way people come to expect me to always be late I wasn't always that way there was a point when I was on time or early always people are always waiting on me it's kind of like a thing now it's gotten worse over the past 5 years kind of depressing to say it out loud [talk to text]

CGCrimsonLily avatar
CGCrimsonLily
1y

And forgetting things

CGCrimsonLily avatar
CGCrimsonLily
1y

I am embarrassed by my messy house. I realize I am probably the cleanest of my family but I still won’t have company over because I can’t keep up.

iamwe? avatar
iamwe?
1y

Yes! Yes! Why does it feel like this! People tell me all the time it’s not bad but I’m like it is! It’s so unorganized and messy!

librarylandlisa avatar
librarylandlisa
1y

Me too. It’s so bad. We have 4 kids and I fear they are learning this from me.

homegnome82 avatar
homegnome82
1y

Same. I want to be able to have friends over or my kids to have friends over but I’m so embarrassed by the constantly trashed house that I never invite anyone. And if someone shows up unannounced, I end up feeling humiliated and like I’m viewed as a mess, gross, failure, or bad mom.

drama avatar
drama
1y

My impulses I just can’t seem to shut the f up! When I am bothered at work I just want to leave the scene and many times I just simply can’t and I have to sit there and deal with people especially colleagues drive me nuts!!! When someone is stressed I get stressed too and they see me as a threat since I am the only one who voices the discomfort or difficulty of a situation meanwhile others are living it internally.. I really have no patience and everything seems so slow as if I am in a slow motion movie.. I just want to get things done and I can’t because I have to collaborate with other people!! I love my job hence I decided to solve my issues since I can’t change others I am working on my internal discomfort

dogslikecats avatar
dogslikecats
1y

I wish I could give 4 hearts for this one!

sahri avatar
sahri
1y

I’m always very embarrassed of never finishing projects. I’m frequently super pumped and excited to learn new things or do something interesting, then I get people excited too, but I never get to the end of it. It got to the point where I don’t even bother to tell people about my plans or projects because I fear that I will give up midway and people will be disappointed.

homegnome82 avatar
homegnome82
1y

I’ve done this too. I’ve stopped talking about plans because I get embarrassed or feel judged when someone asks about them later and they’re not done or haven’t happened.

pickles avatar
pickles
1y

My rejection sensitivity disorder

valquery avatar
valquery
1y

It didn't bother me until I had my daughter and she started struggling in school because of it. I feel bad for her struggles but worse because of how she's been treated.

homegnome82 avatar
homegnome82
1y

Yes, the parent guilt is real. I feel like I need to do so much more to help my kid regulate but most of the time I don’t have the capacity to. Then I just feel so terrible for them acting out and struggling.

mukuro avatar
mukuro
1y

I prefer to not think about my ADHD not as a stigmatised diagnose, but as… my brain is just different from the others. It has its strong points, it has it’s weaknesses, but we can work with what we have

colorfulanatomy avatar
colorfulanatomy
1y

I think this would be lovely. I believe the commonality in number of individuals and nuances of ADHD only support the idea that ‘neurotypical/ neurodivergent’ reality is not so ‘divergent’ (and I beg to ask from what are we diverging?) after all

mukuro avatar
mukuro
1y

I prefer to *

mandei96 avatar
mandei96
1y

Unable to comprehend, no energy, memory loss

sahri avatar
sahri
1y

God, memory loss is something that truly makes me sad. I often want to participate in conversations about topics that I really like and know about, but I simply can’t remember a thing about any of it. I feel like an spectator in group conversations.

brokenbrain avatar
brokenbrain
1y

So true

insomniac78 avatar
insomniac78
1y

Same

ctuallydisabled avatar
ctuallydisabled
1y

How much I beat myself up despite knowing it’s not all negative and that it’s internalised ableism

msp3000 avatar
msp3000
1y

It depends on the environment. Avoid people who cannot understand that invisible illnesses are real and that everyone has at least one of them.

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